Yesterday we went to church with Tristan, Aaron and Kahlan. We stayed for sacrament meeting and sadly had to leave 10 minutes before the hour was up. I haven't been feeling that great and the chairs don't help. I wanted to have a real meal together as a family before I left for the hospital and thanks to my Insta Pot the meal was ready when we got home. After lunch I folded Dan's laundry and Shayna and I headed to the hospital for a visit with Dan. He was wearing his puffy mittens again and basically begged with his eyes to take them off. As soon as we do that he usually starts to lift the sheet and messes around with his diaper. We kept the threat of the mittens going back on him but he simply laughs. Shayna tried to play tic-tac-toe with him but he simply was not into it. We told him the latest news and watched some TV with him, told him jokes and of course he laughed a lot. He tried so hard to say something but the words are not coming out yet.
The one thing that you can notice about him now is the weight loss. Specially on his legs and upper body. I think he is really hungry all the time and wishes he could eat food. I now the speech therapist said she wanted to have him eat a couple of meals a day and then do the tube feeding at night but I never see the nurses giving him food... I am too afraid to ask them because I don't want to annoy them but I do get concerned when I hear his tummy rumble. I have notice the nurses rather sit at their desk than come and check on him. I worry so much about everything, there isn't a monitor on him now so they can't know if he is in trouble or needs anything. He can't communicate with them so whatever he needs only happens to get done when they come check on his infusion or they need to administer another drug. I will check with the speech therapist next time I see him to make sure Dan is getting what he needs.
Before we left I told Dan that maybe we would skip the visit for next day but I would try and come see him on Tuesday, he started to cry so I promised we would come today. I wish we could stay longer, that I didn't have to worry about laundry and all the other responsibilities I have at home but such is life.
Yesterday was hard, actually the whole weekend was hard. Even when I took the kids to see their dad it was hard. I keep messing up, keep forgetting things, you name it it was not a good couple of days and on top of that we have a weird bug infestation in the kitchen. At first I thought it was the weevils again but it wasn't, it was a mixture of carpet beetles and some other black tiny beetle. There were so many and it didn't matter what we sprayed it was not making them go way. I bought some traps and a spray specific for this kind of bug, moth balls and also went around the perimeter of the house to take care of it. It is taking longer than expected but I think slowly they are going way. Just what I needed...
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